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Bedside to Bench - How the HHT Community Drives Research Initiatives
Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Now, the results are in! Learn how Cure HHT is using the information provided from these survey findings to determine research funding priorities and build an HHT Research Roadmap that will help navigate our path to a cure!

Join HHT caregiver Cassi Friday, as well as Dr. Anthony Anzell — HHT patient, researcher, and Cure HHT Board Member — as they walk you through the survey findings, introduce you to the exciting new Cure HHT Research Network (CHRN), and explain how the HHT patient community (that's you!) will be driving research initiatives through this very same network. Don't miss this opportunity to learn about this powerful new approach to research!
Cassi Friday is a caregiver whose husband and two (of three) children have HHT. She is currently completing her PhD from the University of Kentucky where she studies Alzheimer's disease in the College of Medicine's Physiology Department. Cassi is a passionate advocate for HHT patients and families, and loves to help communicate science in fun, easy-to-understand ways.

Dr. Anzell, a patient, researcher and Cure HHT Board Member, is currently conducting his post-doctorate research at the University of Pittsburgh under the tutelage of famed HHT researcher, Dr. Beth Roman. Their research focuses on understanding the genetic and molecular mechanisms that give rise to arteriovenous malformations in HHT. His goal: to develop clinically viable therapies for HHT patients. Since his HHT diagnosis at age 15, he has dedicated his life to raising awareness and finding a cure for HHT.

Nov 10, 2021 07:00 PM in Eastern Time (US and Canada)

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